Participation opportunities:
If you meet the criteria below and are interested in participating in the study,
​please email [email protected] for more information.

1. Xyrem or Xywav (sodium oxybate)

Have you started taking Xyrem or Xywav (sodium oxybate) in the past 3 years? 
​If yes, we want to talk to you!
 
We would like to extend an invitation to individuals age 18 or above who started taking Xyrem or Xywav (sodium oxybate)—a REMS program-covered drug—in the past 3 years to participate in a 60-minute phone interview on their experiences. Participants will receive a $50 Amazon gift card as a token of appreciation.​

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2. Letairis (ambrisentan) or
​Tracleer (bosentan)

Have you started taking Letairis (ambrisentan) or Tracleer (bosentan) in the past 3 years? ​If yes, we want to talk to you!

We would like to extend an invitation to female patients between the ages of 18 and 45 who started taking Letairis (ambrisentan) or Tracleer (bosentan)—a REMS program-covered drug—in the past 3 years to participate in a 60-minute phone interview on their experiences. Participants will receive a $50 Amazon gift card as a token of appreciation.

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3. Lemtrada (alemtuzumab)

​Have you started taking Lemtrada (alemtuzumab) in the past 3 years? ​If yes, we want to talk to you!

We would like to extend an invitation to individuals age 18 or above who started taking Lemtrada (alemtuzumab) —a REMS program-covered drug—in the past 3 years to participate in a 60-minute phone interview on their experiences. Participants will receive a $50 Amazon gift card as a token of appreciation.

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​4. Clozaril (clozapine)

​Have you started taking Clozaril (clozapine) in the past 3 years? ​If yes, we want to talk to you!

We would like to extend an invitation to individuals age 18 or above who started taking or care for someone who started taking Clozaril (clozapine) —a REMS program-covered drug—in the past 3 years to participate in a 60-minute phone interview on their experiences. Participants will receive a $50 Amazon gift card as a token of appreciation.

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​5. Palynziq ​(pegvaliase-pqpz)

Have you started taking Palynziq (pegvaliase-pqpz) in the past 3 years? ​If yes, we want to talk to you!

We would like to extend an invitation to individuals age 18 or above who started taking or care for someone who started taking Palynziq (pegvaliase-pqpz) —a REMS program-covered drug—in the past 3 years to participate in a 60-minute phone interview on their experiences. Participants will receive a $50 Amazon gift card as a token of appreciation.

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​6. Accutane ​(isotretinoin)

Have you started taking Accutane (isotretinoin) in the past 3 years? ​If yes, we want to talk to you!

We would like to extend an invitation to female patients between the ages of 18 and 45 who started taking Accutane (isotretinoin) —a REMS program-covered drug—in the past 3 years to participate in a 60-minute phone interview on their experiences. Participants will receive a $50 Amazon gift card as a token of appreciation.

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7. Revlimid (lenalidomide) or
​Pomalyst (pomalidomide) or
Thalomid ​(thalidomide)

Have you started taking Revlimid (lenalidomide) or Pomalyst (pomalidomide) or Thalomid (thalidomide) in the past 3 years? ​If yes, we want to talk to you!

We would like to extend an invitation to female patients between the ages of 18 and 45 who started taking Revlimid (lenalidomide) or Pomalyst (pomalidomide) or Thalomid (thalidomide) —a REMS program-covered drug—in the past 3 years to participate in a 60-minute phone interview on their experiences. Participants will receive a $50 Amazon gift card as a token of appreciation.

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Study Team

• ​Ameet Sarpatwari, PhD, JD 
• Aaron S. Kesselheim MD, JD, MPH
• Will Feldman, MD, DPhil
• Aviva Wang, MS
• ​Su Been Lee, BA
• Heidi Zakoul, BA
• Alex Cervone, BA
• Chinenye Iroajanma, BA

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Contact Us

Principal Investigator
Ameet Sarpatwari, PhD, JD 
​
Email: [email protected]
Phone: ​(617) 278-0930
​

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